.... Please wear PURPLE on MAY 15, 2015. This is for LUPUS awareness. Take a moment and get familiar with what it is. You never know whom you may be helping out in this small request.
It was nearly 7 1/2 years before I was diagnosed. Sometime after my 2nd child was born.
Being a person that literally burned the candle at both ends......(raising a family, working full time, volunteering in my spare time, taking a few classes, being a wife, keeping my home spotless,and attending various functions)...
...To becoming a person who could barely get through a 4 hour day due to severe fatigue or strange pains through out my skeletal system or sudden illnesses that just could not be explained.. I literally could sleep 18 hours and wake feeling as if I had not been asleep in 4 or 5 days.
What a relief that day was... and what a scare at the same time. Relief, because I actually was not crazy. Something had been wrong for sometime and everyday was a different battle. Unfortunately, at that time, there was only a very small paragraph in the medical research books when I went to study what this disease was. I knew then, that life was not going to be easy on me or my family. Trying to raise two young girls, be a wife,and work full time was pure hell. Though I was diagnosed, there were no easy answers to helping me become somewhat functional. The meds offered at that time were nearly null and what was offered well, the side effects were nearly worse than what I went through on a daily basis.
Now I am finding new hope, the research for Lupus over the last 6-7 years has increased by 10 fold. I am one of the lucky ones with this disease. I have had the help of my immediate family and some friends. Though I had to change my life and sit out on many things... I have been able to live and raise my children. My husband has been a saint (to some degree.....PS. I don't want him to get a chip on his shoulders...LOL). I have accomplished learning how to adjust, to limit some stressors (not an easy task at all), to learn my body and what and when flairs are more than just daily fatigue. I still have a hard time living the life of the functional person on an every day normal scale, but what is normal.
You never know what the person around you may be going through... LSE is not a visible disease, It is not a disease that you can look at them and know they are ill. 80% of Lupus patients can not explain sometimes how they are feeling. Because it's not the common cold, or regular fatigue. It's not Arthritis or the Flu that plagues them. There body is attacking it's self from within. Everyday is a battle and everyday is different. Not one Lupus patient is the same as the next Lupus patient. Symptoms are as varied as the person and flairs are a random as where lightening may strike.